Table 3 Concordance between SWEDCON and medical records. Visits and diagnosis
From: National quality register of congenital heart diseases – Can we trust the data?
Information in SWEDCON N (%) | Information in medical record N (%) | Data in both SWEDCON and medical records N (%) | Concordance (%) | |
|---|---|---|---|---|
SWEDCON/children | ||||
Date of visit | 308 (92%) | 331 (99%) | 303 (90%) | 71% |
Main cardiac diagnosis | 181 (99%) | 282 (85%) | 280 (85%) | 74% |
All cardiac diagnosis | 181 (99%) | 173 (95%) | 172 (95%) | 74% |
Surgery (diagnosis) | 50 (94%) | 53 (100%) | 50 (94%) | 77% |
Catheter interventions (diagnosis) | 17 (94%) | 17 (94%) | 16 (89%) | 71% |
Cardiac medical therapy | 169 (93%) | 175 (96%) | 162 (89%) | 98% |
Information on transition to GUCH or end of check-ups | Yes = 59 | Yes = 62 | 182 | 92% |
No = 123 | No = 120 | |||
SWEDCON/GUCH | ||||
Date of visit | 300 (90%) | 331 (99%) | 297 (89%) | 85% |
Main cardiac diagnosis | 186 (100%) | 293 (89%) | 293 (89%) | 80% |
All cardiac diagnosis | 186 (100%) | 180 (97%) | 180 (97%) | 79% |
Catheter interventions (diagnosis) | 47 (98%) | 46 (96%) | 45 (94%) | 90% |