Table 2 Retrieval of information in SWEDCON in medical journals
From: National quality register of congenital heart diseases – Can we trust the data?
Variable |
|---|
Main diagnosis from SWEDCON (also inclusion criteria): • Tetralogy of Fallot (ICD-10: Q21.3, EPCC: 01.01.01, 01.01.06, 01.01.25) • Fontan circulation (ICD-10: Q20.8–9, Q23.4, EPCC: 01.01.22, 07.08.41, 07.08.42, 07.02.00, 07.07.00, 01.01.09) • Ventricular septal defect (VSD) (ICD-10: Q21.0, EPCC: 07.10.00–07.10.05, 07.11.01, 07.12.00–07.12.01) • Atrial septal defect (ASD/PFO) (ICD-10: Q21.1, EPCC: 05.04.01, 05.04.02, 05.03.01) • Aortic stenosis (ICD-10: Q23.0, EPCC: 09.15.92, 09.15.00, 09.15.01, 09.15.13) |
Cardiac diagnosis and genetic disorders (main and total) registered at the last two visits in medical record and in SWEDCON |
Date of last two visits |
Medical therapy: • Information on medication; yes or no. • Type of medical therapy (independent of date): ○ Children: heart failure treatment, antiarrhythmic treatment, antithrombotic treatment, treatment for systemic hypertension, treatment for pulmonary hypertension, immunomodulatory ○ GUCH: pacemaker, Sotalol, class I antiarrhythmic agent, Amiodarone, other antiarrhythmic, beta blocker, calcium channel blocker, digitalis, diuretics, nitroglycerin, ACEI (angiotensin-converting-enzyme inhibitor), ARB (angiotensin II receptor blocker), ASA (acetylsalicylic acid), thrombocyte inhibitor other than ASA, Waran, NOAC (Non-Vitamin K Antagonist Oral Anticoagulants), other agent against systemic hypertension, endothelin receptor antagonist, Sildenafil, prostacyclin analogue, other agent against pulmonary hypertension, agent against hyperlipidaemia, oxygen therapy |
Examinations • Children: date and examinations performed at the last two out clinic visits; ECG (electrocardiography), ECO (echocardiography), TEE (transesophageal echocardiography), chest radiograph, exercise ECG (electrocardiography), 24-h ECG, control of PM (pacemaker)/ICD (implantable cardioverter defibrillator), Isotope, MRI (Magnetic Resonance Imaging), CT (Computed Tomography) • GUCH: date for the last examination, ECG, exercise ECG, echocardiography, Angiography or coronary angiography, heart catheterization, isotope, chest radiograph, MRI, electrophysiology, CT, fetal echocardiography, 24-h-bloodpressure |
Surgeries and catheter interventions and diagnoses |
Information on ending of follow-ups, information on transition to GUCH or deceased (pediatric). |