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Table 1 Overarching principles of transition care as set out in the NICE guidelines [7]

From: PAH-CHD: transition to adulthood

Principle of transition care

Description

Shared organisation of care

Involving the young person and their carers in the service design, planning, delivery and evaluation of their own programme of transition

Developmentally appropriate support

Embracing differences in maturity, cognitive abilities, psychological status, social and personal circumstances between service users

Strengths-based support

Focusing on what is positive and possible for the young person. Identification and reinforcement of the support available to the young person

Gradual transfer of responsibility

Supporting decision-making and developing the ability to direct one’s own care over time, addressing education and employment, community inclusion, health and wellbeing and independent living

Links with other services

Linking the transition process to a named GP and to colleagues in education