From: National quality register of congenital heart diseases – Can we trust the data?
Variable | Information in Swedcon | Information in medical records | Concordance (%) | Specificity | Sensitivity | |||
---|---|---|---|---|---|---|---|---|
Number of patients with treatment | Number of patients without treatment | Number of patients with treatment | Number of patients without treatment | |||||
Medical treatment (pediatric) | Heart failure | 5 | 17 | 8 | 14 | 86% | 100% | 63% |
Antiarrhythmics | 1 | 21 | 1 | 21 | 100% | 100% | 100% | |
Antithrombotic | 14 | 8 | 15 | 7 | 86% | 86% | 87% | |
Systemic hypertension | 2 | 20 | 2 | 20 | 91% | 95% | 50% | |
Pulmonary hypertension | 3 | 19 | 3 | 19 | 100% | 100% | 100% | |
Immunomodulatory | 0 | 22 | 0 | 22 | 100% | 100% | – | |
GUCH information on treatment | Pacemaker | 8 | 171 | 10 | 174 | 98% | 99% | 70% |
Medical cardiovascular therapy | 70 | 110 | 81 | 103 | 91% | 97% | 84% | |
Medical treatment (GUCH) | Sotalol | 3 | 80 | 3 | 80 | 100% | 100% | 100% |
Class I antiarrhythmic agent | 1 | 82 | 1 | 82 | 100% | 100% | 100% | |
Amiodarone | 1 | 82 | 0 | 83 | 99% | 99% | – | |
Other antiarrhythmic | 1 | 82 | 2 | 81 | 99% | 100% | 50% | |
Beta blocker | 23 | 60 | 27 | 56 | 90% | 96% | 78% | |
Calcium channel blocker | 6 | 77 | 10 | 73 | 95% | 100% | 60% | |
Digitalis | 3 | 80 | 2 | 81 | 99% | 99% | 100% | |
Diuretics | 13 | 70 | 18 | 65 | 89% | 97% | 61% | |
Nitro-glycerine | 0 | 83 | 1 | 82 | 99% | 100% | 0% | |
ACEIa | 11 | 72 | 12 | 71 | 96% | 99% | 83% | |
ARBb | 17 | 66 | 19 | 64 | 95% | 98% | 84% | |
ASAc | 24 | 59 | 29 | 54 | 89% | 96% | 76% | |
Thrombocyte inhibitor other than ASAc | 4 | 79 | 3 | 80 | 94% | 96% | 33% | |
Warfarin | 18 | 65 | 18 | 65 | 93% | 95% | 83% | |
NOACd | 6 | 77 | 7 | 76 | 99% | 100% | 86% | |
Other agent against systemic hypertension | 0 | 83 | 2 | 81 | 98% | 100% | 0% | |
Endothelin receptor antagonist | 2 | 81 | 3 | 80 | 99% | 100% | 67% | |
Sildenafil | 1 | 82 | 1 | 82 | 100% | 100% | 100% | |
Prostacyclin analogue | 0 | 83 | 0 | 83 | 100% | 100% | – | |
Other drugs against pulmonary hypertension | 0 | 83 | 0 | 83 | 100% | 100% | – | |
Drug against hyperlipidaemia | 19 | 64 | 17 | 66 | 98% | 97% | 100% | |
Oxygen therapy | 0 | 83 | 0 | 83 | 100% | 100% | – |