Table 4 Information on examinations and medical therapy
From: National quality register of congenital heart diseases – Can we trust the data?
Variable | Information in SWEDCON | Information in medical records | Concordance (%) | Specificity | Sensitivity | |||
|---|---|---|---|---|---|---|---|---|
Examination performed | Examination not performed | Examination performed | Examination not performed | |||||
Pediatric information on performed examinations | ECGa | 205 | 37 | 228 | 14 | 87% | 71% | 88% |
ECHOb | 239 | 3 | 242 | 0 | 99% | – | 99% | |
TEEc | 0 | 242 | 0 | 242 | 100% | 100% | – | |
Chest x-ray | 8 | 234 | 8 | 234 | 98% | 99% | 63% | |
Exercise test | 16 | 226 | 14 | 228 | 97% | 98% | 79% | |
24 h ECGa | 13 | 229 | 14 | 228 | 97% | 99% | 71% | |
PM/ICD-control | 1 | 241 | 0 | 242 | 100% | 100% | – | |
Isotope | 2 | 240 | 0 | 242 | 99% | 99% | – | |
MRId | 4 | 238 | 3 | 239 | 99% | 99% | 67% | |
CTe | 0 | 242 | 1 | 241 | 100% | 100% | 0% | |
GUCH information on performed examinations | ECGa | 178 | 8 | 186 | 0 | 79% | ||
Exercise test | 61 | 125 | 80 | 106 | 72% | |||
ECHOb | 179 | 7 | 185 | 1 | 81% | |||
Angiography or coronary angiography | 12 | 174 | 17 | 169 | 88% | |||
Heart catheterization | 14 | 172 | 40 | 146 | 82% | |||
Isotope | 6 | 180 | 7 | 179 | 95% | |||
Chest x-ray | 25 | 161 | 52 | 134 | 73% | |||
MRId | 25 | 161 | 42 | 144 | 87% | |||
Electrophysiology | 1 | 185 | 1 | 185 | 99% | |||
CTe | 6 | 180 | 27 | 159 | 86% | |||
Fetal echocardiography | 0 | 186 | 1 | 185 | 99% | |||
24-h blood pressure examination | 2 | 184 | 5 | 181 | 98% | |||